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If you don’t want your identifiable patient data to be shared for purposes except for your own care, you can opt-out by registering a Type 1 Opt-out or a National Data Opt-out, or both. These opt-outs are different and they are explained in more detail below. Your individual care will not be affected if you opt-out using either option.
Please see this helpful video https://www.youtube.com/watch?v=YLi9gh7RyLA
Type 1 Opt-out (opting out of NHS Digital collecting your data)
NHS Digital not collect data from GP practices about patients who have registered a Type 1 Opt-out with their practice. More information about Type 1 Opt-outs is in our GP Data for Planning and Research Transparency Notice, including a form that you can complete and send to your GP practice.
The deadline for health and care organisations to comply with national data opt-out deadline has been extended to 31 March 2022. The deadline has been extended again, to enable health and care organisations to focus their resources on the coronovirus (COVID-19) outbreak. Therefore if you do not want your data to be shared with NHS Digital please register your Type 1 Opt-out with your GP practice by 31 March 2022.
If you register a Type 1 Opt-out after this collection has started, no more of your data will be shared with us. We will however still hold the patient data which was shared with us before you registered the Type 1 Opt-out.
If you do not want NHS Digital to share your identifiable patient data with anyone else for purposes beyond your own care, then you can also register a National Data Opt-out.
National Data Opt-out (opting out of NHS Digital sharing your data)
NHS Digital collect data from GP medical records about patients who have registered a National Data Opt-out. The National Data Opt-out applies to identifiable patient data about your health, which is called confidential patient information.
NHS Digital won’t share any confidential patient information about you – this includes GP data, or other data we hold, such as hospital data – with other organisations, unless there is an exemption to this.
To find out more information and how to register a National Data Opt-Out, please read our GP Data for Planning and Research Transparency Notice.